Monday, 25 March 2013

A Scary Calm-Epilepsy Awareness

Tomorrow is Purple Day!!! If possible try to wear something purple in support of epilepsy awareness!

Once again I was researching on the web for a subject to write today.  Like the dummy I am I decided to read up on epilepsy and mortality. Stupid stupid me!  I'm not going to get into that because it's a little too freaky for me.   I will however tell one last story about a seizure and a life changing moment.

When I was around 25 I was having seizures all the time.  I've always been very lucky to be around people to take care of me.  This has not stopped me from getting black eyes,bloody noes, bumps on the head (broken nails. lol).  However I always had someone to take care of me afterwards.  This time I was living alone in an apartment.  I woke up from a seizure on the floor.  I could not move at all and was freezing.  There was a carpet on the floor that I was able to pull over me to keep warm.  Once I gathered enough strength I was able to crawl across the room to call my mom.  Sad huh?
After that seizure I knew my body could not go through it again. The weirdest feeling I've ever experienced is that calm in knowing that I may not survive the next one.
Well I didn't have another seizure again for over a year.  It was almost like my body was telling my brain, no more, let her rest!  I will never forget that feeling for the rest of my life....



Today the lovely Jacki from Adventures in Acetone sent me her purple mani.  I have to say this girl seems sooooo sweet.  I'm sure you all are following her already but if not....you should! She is so talented and she makes the cutest nails.  I love her There's a zoo on my nails mani



Friday, 22 March 2013

Epilepsy & Creativity- Epilepsy Awareness Month

Happy Friday folks!

I was searching the web trying to find something to post for Epilepsy Awareness.  Often I come by the subjects of 'epilepsy and creativity' and 'epilepsy and genius'. It's a debate on the genius aspect but as far as creativity there is alot more evidence.

The best way to describe what is going on in the brain during a seizure is a sort of electrical storm.  It's almost as though this electrical activity brings to life or activates parts of the brain.  During a seizure you can see how it physically effects the body but it also effects our sense perceptions, memory, emotion, creativity....everything. Many have claimed to see this in themselves and others.

Someday we will know for sure. It's a fact that a seizure effects the whole brain. Just because we can't see the emotional or sensory effects does not mean they aren't there.



Head on over to Nicole Gets Nailed to see her weekly purple post in support of ME :)  Ya just gotta love this girl!



Wednesday, 20 March 2013

Lavender Ribbon- Epilepsy Awarness

As most of you have probably noticed all of my awareness posts have been me holding a lavendar ribbon. I found a cool description at www.purpleday.org/ and why lavender is such a perfect fit for those with epilepsy

 The  international colour for epilepsy, lavender. The lavender flower is also often associated with solitude, which is representative of the feelings of isolation many people affected by epilepsy and seizure disorders often feel. 


Check out more about purple day at www.purpleday.org/









I have yet another purple mani from Pierced Polished and Probably Geeky
Thank you!




Tuesday, 19 March 2013

A not so attractive seizure -Epilepsy Awareness Month

I was not quite sure what to do for today's Epilepsy awareness post so I decided to go with another story.

I've always kept an upbeat attitude about having epilepsy.  My family, friends and I joke around about it.  We all know the severity but it helps to keep happy!

This was the first seizure my husband witnessed.  It was the morning as most of mine are.  I was once again in the bathroom and fell into the hall way.  Not only did I fall in to the hall way but also right in to the cats litter box!! It was not so much of a face plant right into it as it was hitting the side and causing it to flip.  We joke about it now but at the time he was devastated.  I remember waking up on the floor with his head laying right beside me.  I was so heartbroken to see him. He had the biggest alligator tears pouring out of his eyes. It was pretty touching to say the least



Remember to send me pics of your purple mani's or thumbs.  nailnarcotics@gmail.com 

Friday, 15 March 2013

Thank you for your Support-Epilepsy Awareness

I want to thank all of you for your purple mani's and comments so far.  I decided to leave my thumb out for the day and just show the pictures I've received recently.

Their is such a huge stigma associated with epilepsy which causes most people affected to keep it to themselves.  I wanted to educate people on this but I have to tell you I've been schooled myself :o)

A lot of the comments people have made are to say they know someone with epilepsy.  Not to get mushy or anything but it has touched my heart.  I didn't realize how alone I felt about having epilepsy because I have no one to relate to.  The fact is I do and they are just in hiding.  With the help of all of you were making it known that this is something more common than people think.  The misconceptions have to be corrected so none of us have to be embarrassed any longer


So thank you to all for opening my eyes that even though I'm not alone I feel alone.  So lets change that! This series of awareness posts may not be much....but it something!



First up a dried flower purple mani from the lovely Fairly Charming.  I have to say that I have never seen dried flowers looking this good on a mani.  She is so talented. Make sure to go check her out 




 Up next the brandspankin new to blogging  UKNailRunner.  I'm using two of her purple mani's which are equally awesome.  Please go have a look see at  UKNailRunner.






...and of course my lil' buddy Nicole gets Nailed. She is doing a purple mani for me every Wednesday.  Her totally rad manicures and pretty hilarious personality makes her a must follow blog







And last but definitely not least.....Me,Myself & Polish.  She does a bit of everything which is so awesome.   I'm loving her holographic and nail stamping. Check it out here


Wednesday, 13 March 2013

Seizure Response Dogs- Epilepsy Awareness

I thought I would give a shout out to all those amazing seizure response dogs out there!  We mostly see service dogs working for the blind but service dogs are used for so much more.  I remember seeing a seizure response dog shortly after I was diagnosed with epilepsy.  At that time I was not a dog lover though....shocking , I know!

A little short story about my old dog.

I had a hound mix that would run away if you dropped his leash. It was so annoying but my fancy seizure tricks changed that habit of his!  One morning I woke up and was feeling horrible. I looked at my hands and arms and I was all muddy and dirty. I asked my boyfriend what happened and he said I must of had a seizure. Apparently I took my dog outside in the morning had a seizure and got back in somehow.  I was amazed that he didn't run away. There was no way I would of held on to his leash.  When I felt better I went outside to check it out.  It was very apparent where I had it in the snow. There were no paw prints showing him walking away. From that day on he followed me everywhere. I got up, he got up. I went to the bathroom, he came with me.  etc. etc. etc

It's amazing how intuitive our furry friends are.

For this thumb I took the inspiration from the vests seizure response dogs where. Typically they are yellow with some holographic pieces.





Tuesday, 12 March 2013

A Seizure Story'The F-Bomb' - Epilepsy Awareness


Story time!!! 
I had said I would tell you about a couple seizures I had that have always stood out to me.  Today's will be about the very first time I heard my mom say F**K! 
I'm never aware until after my seizure that I've had one.  In this one instance I knew it was happening(at least at the beginning).  It was the worse feeling I have ever experienced.  I was brushing my hair in the bathroom when I felt my body start to shutter. My heart was racing because I had not control over my body.  I must of walked out to the hall a bit and fell. That is when I heard my mom drop the F bomb.  She then called my brother.  I swear I was telling her 'it's okay mommy I will be ok'.  (heartbreaking).  The next thing I knew I was in my bed.  I can't imagine what its like to see a loved one go through something like that.  Most of the time it's not me I worry about, it's the people who love me that have to witness it.  

It makes me giggle now but also makes me kind of sad.  I'm so lucky to have such amazing people in my life





Now on to my wonderful supporters!  If you are not already following these lovely ladies please click on the links. They have amazing skills and beautiful nails of course.  
Thank you so much to those who have supported me so far.  I welcome more from the same people as well as others!




Jule at Lackfein